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Somatic symptoms, pain, catastrophizing and the association with disability among children with heritable connective tissue disorders

de Koning, Lisanne E. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Warnink-Kavelaars, Jessica; van Rossum, Marion A.; Bosman, Diederik; Menke, Leonie A.; Malfait, Fransiska; de Boer, Rosa; Oosterlaan, Jaap; Engelbert, Raoul H.H. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies

The aim of the present study was to investigate the nature and prevalence of nonspecific somatic symptoms, pain and catastrophizing in children with Heritable Connective Tissue Disorders (HCTD), and to determine their association with disability. This observational, multicenter study included 127 children, …

2023-07AlgemeenArtikel

Physical activity and physical fitness in children with heritable connective tissue disorders

de Koning, Lisanne (Centre Of Expertise Urban Vitality); Warnink-Kavelaars, Jessica; van Rossum, Marion; Limmen, Selina; Van der Looven, Ruth; Muiño-Mosquera, Laura; van der Hulst, Annelies; Oosterlaan, Jaap; Rombaut, Lies; Engelbert, Raoul (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten)

Objectives: Health problems in patients with heritable connective tissue disorders (HCTD) are diverse and complex and might lead to lower physical activity (PA) and physical fitness (PF). This study aimed to investigate the PA and PF of children with heritable connective tissue disorders (HCTD). Methods: …

2023AlgemeenArtikel

Heritable connective tissue disorders in childhood: Decreased health-related quality of life and mental health

Warnink-Kavelaars, Jessica; de Koning, Lisanne E. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies; Menke, Leonie A.; Alsem, Mattijs W.; van Oers, Hedy A.; Buizer, Annemieke I.; Engelbert, Raoul H. H. (Centre Of Expertise Urban Vitality); Oosterlaan, Jaap

The psychosocial consequences of growing up with Heritable Connective Tissue Disorders (HCTD) are largely unknown. We aimed to assess Health-Related Quality of Life (HRQoL) and mental health of children and adolescents with HCTD. This observational multicenter study included 126 children, aged 4–18 years, …

2022-07AlgemeenArtikel

Heritable connective tissue disorders in childhood

Warnink-Kavelaars, Jessica; de Koning, Lisanne E (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies; Alsem, Mattijs W; Menke, Leonie A; Oosterlaan, Jaap; Buizer, Annemieke I; Engelbert, Raoul H H (Centre Of Expertise Urban Vitality); On Behalf Of The Pediatric Heritable Connective Tissue Disorders Study Group

Heritable Connective Tissue Disorders (HCTD) show an overlap in the physical features that can evolve in childhood. It is unclear to what extent children with HCTD experience burden of disease. This study aims to quantify fatigue, pain, disability and general health with standardized validated questionnaires. …

2021-05-28AlgemeenArtikel

Using the theoretical domains framework to inform strategies to support dietitians undertaking body composition assessments in routine clinical care

CJD Jobber; SA Wilkinson; EK Hughes; F Nave; Barbara van der Meij

BackgroundMalnutrition, sarcopenia and cachexia are clinical wasting syndromes characterised by muscle loss. Systematic monitoring by body composition assessment (BCA) is recommended for the diagnosis, treatment and monitoring of the syndrome(s). This study investigated practices, competency, and attitudes …

2021AlgemeenArtikel

Insight into the Posthospital Syndrome: A 3-month longitudinal follow up on geriatric syndromes and their association with functional decline, readmission, and mortality

van Seben, Rosanne; Covinsky, Kenneth E; Reichardt, Lucienne A; Aarden, Jesse J (Centre Of Expertise Urban Vitality); van der Schaaf, Marike (Centre Of Expertise Urban Vitality); van der Esch, Martin (Lectoraat Interdisciplinaire Zorg Voor Chronische Gewrichtsaandoeningen); Engelbert, Raoul H H (Centre Of Expertise Urban Vitality); Twisk, Jos W R; Bosch, Jos A; Buurman, Bianca M

BACKGROUND: Acute hospitalization may lead to posthospital syndrome, but no studies have investigated how this syndrome manifests and geriatric syndromes are often used as synonym. However, studies on longitudinal associations between syndromes and adverse outcomes are scarce. We aimed to analyze longitudinal …

2020-02-19AlgemeenArtikel

The contribution of frailty, cognition, activity of daily life and comorbidities on outcome in acutely admitted patients over 80 years in European ICUs

VIP2 study group

PURPOSE: Premorbid conditions affect prognosis of acutely-ill aged patients. Several lines of evidence suggest geriatric syndromes need to be assessed but little is known on their relative effect on the 30-day survival after ICU admission. The primary aim of this study was to describe the prevalence …

2020-01AlgemeenArtikel

The course of geriatric syndromes in acutely hospitalized older adults

van Seben, Rosanne; Reichardt, Lucienne A; Aarden, Jesse J. (Faculteit Gezondheid); van der Schaaf, Marike; van der Esch, Martin (Lectoraat Interdisciplinaire Zorg Voor Chronische Gewrichtsaandoeningen); Engelbert, Raoul H.H. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Twisk, Jos W R; Bosch, Jos A; Buurman, Bianca M.

Objectives To establish the prevalence and course of geriatric syndromes from hospital admission up to 3 months postdischarge and to determine the probability to retain geriatric syndromes over the period from discharge until 3 months postdischarge, once they are present at admission. Design Prospective …

2019-02AlgemeenArtikel

The correlation between central sensitization disorders and self-management in chronic non-specific low back pain patients

Corey Robledo (Student); Tjarco Koppenaal (Begeleider)

Low back pain (LBP) is a global problem that causes high rates of treatment costs, sick leave, and functional disability. Most LBP patients suffer from non-specific LBP (NSLBP) and a smaller portion of sufferers develop chronic pain (CLBP). Within CLBP patients, a more complicated group of syndromes …

2019GezondheidBachelor

Psychosocial- and physical functioning in hypermobile Ehlers-Danlos Syndrome: a 5-year follow-up study

de Vries, Janneke (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies; De Wandele, Inge; Scheper, Mark; Malfait, Franciska; Engelbert, Raoul (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Calders, Patrick

2018-09-26AlgemeenConferentiebijdrage

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