In dit literatuuronderzoek is vanuit verschillende kennisbronnen samengebracht welke theorieën, goede voorbeelden en aandachtspunten er zijn over participatie van jongeren met een chronische aandoening in beleid, projecten en initiatieven van gemeenten. Het literatuuronderzoek pretendeert niet om volledig …

During mirror meetings, professionals were confronted with the experiences of young people (YP) with inflammatory bowel disease to encourage them to improve their transitional care arrangements. The mirror meetings were held under guidance of an independent moderator. YP conversed about their transition …

Introduction: Aging with a childhood-onset disability, such as cerebral palsy (CP), spina bifida (SB), and muscular diseases (MD), comes along with significant impairments and comorbidities. Despite the increasing evidence an overall picture is lacking. This study aimed to review the literature about …

De website OpEigenBenen.nu geeft veel informatie aan zorgprofessionals die de transitie van jongeren met chronische aandoeningen van kinderzorg naar volwassenenzorg willen verbeteren. De Transitie Toolkit bevat beschrijvingen van interventies én instrumenten om transitiezorg in brede zin vorm te geven …

Introduction: Diabetes distress (DD) is a serious problem in many people with diabetes and is associated with unfavorable clinical and psychosocial outcomes in children and adults. Little is known about DD in young adults (YAs) with type 1 diabetes mellitus (T1DM) who transferred to adult care. This …

Objective: Little is known about active involvement of young people (YP) with type 1 diabetes (T1DM) in transitional care. This study aims to gain insight into patient-provider interactions during outpatient hospital consultations. Methods: Semi-structured observations (n = 61) of outpatient consultations …

Background: Adults with cerebral palsy (CP) may experience an increasing impact of their disability on daily life and this may interfere with their citizenship. Citizenship is a layered construct. Next to formal and theoretical significations, and civil rights acts such as the UN Convention on the Rights …

Purpose: The desirability of evaluating transition programs is widely acknowledged. This study aimed to explore the added value of transitional care investments for young adults with type 1 diabetes mellitus. Design and methods: Based on qualitative data, two groups of diabetes teams were created through …

Offers a comprehensive definition of self-management, and focuses on young people achieving a good quality of life and their maximum potential. Focuses on the challenges that young people with different chronic conditions have in common rather than on specific medical tasks. Provides a positive youth …

A special issue of Journal of Clinical Medicine (ISSN 2077-0383). Special issue guest editors: Dr. AnneLoes van Staa, Dr. Jane Sattoe, Dr. Erwin Ista