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Experiences and support needs of families raising adolescents with profound intellectual and multiple disabilities during the transition to adulthood

van den Dries-Luitwieler, Nicole (Participation And Health Of Persons With Intellectual And Visual Disabilities); Luijkx, Jorien; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Van der Putten, Annette; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

Er is een gebrek aan kennis over gezinnen die adolescenten opvoeden met ernstig verstandelijke en meervoudige beperkingen (PIMD) tijdens de overgang naar volwassenheid. Deze studie onderzoekt de ervaringen en ondersteuningsbehoeften van deze gezinnen tijdens deze transitie. Er werd gebruik gemaakt van …

2024-10-30AlgemeenArtikel

Experiences of Adult Siblings of Individuals With an Intellectual Disability and Pervasive Support Needs

Dorsman, Naomi (Participation And Health Of Persons With Intellectual And Visual Disabilities); Luijkx, Jorien; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Van der Putten, Annette; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

Broers en zussen zijn belangrijk in het leven van mensen met een verstandelijke beperking en pervasieve ondersteuningsbehoeften. De ervaringen van volwassenen met de dingen die ze doen met of voor hun broers en zussen met pervasieve ondersteuningsbehoeften blijven onderbelicht. Deze studie onderzocht …

2024-04-15AlgemeenArtikel

Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities

Lahaije, S.T.A.; Luijkx, Jorien; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); Van der Putten, Annette

Personen met ernstige verstandelijke en meervoudige beperkingen (PIMD) hebben veel ondersteuningsbehoeften, die door hun familie moeten worden ingevuld. Door veerkrachtig te zijn, kunnen gezinnen zich positief aanpassen aan deze uitdaging en een positieve FQOL behouden. Daarom wilden we begrijpen hoe …

2024-03-28AlgemeenArtikel

The roles of adult siblings of individuals with a profound intellectual disability

Dorsman, Naomi (Participation And Health Of Persons With Intellectual And Visual Disabilities); Waninge, Aly (Healthy Ageing, Allied Health Care And Nursing); van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Luijkx, Jorien; Van der Putten, Annette A. J.

Background Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. Method We examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. …

2023-08-07AlgemeenArtikel

Well-Being of Families with a Child with Profound Intellectual and Multiple Disabilities

Lahaije, S.T.A.; Luijkx, J; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); van der Putten, A. A. J.

In disability research, there is an increased focus on the well-being of families with a child with a disability, also known as family quality of life (FQOL). However, the well-being of families with a child with profound intellectual and multiple disabilities (PIMD) has not yet been explored, even though …

2023-05-24AlgemeenArtikel

Adult siblings of people with a profound intellectual disability; roles, shared roles and the perceived weight of the provided support

Dorsman, Naomi

2023-02-06Mens & Maatschappij; …Conferentiebijdrage

Effects of the “Care for Participation+” Intervention on the Participation of Adults With Visual and Severe or Profound Intellectual Disabilities: A Nonrandomized Controlled Trial

Hanzen, G. J.; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); Van Nispen, R.M.A.; Vlaskamp, Carla; Van der Putten, A.A.J.

Background: The “Care for Participation+” (CFP+) intervention was developed in order to change the attitudes of direct support professionals (DSPs) regarding the participation of adults with visual and severe or profound ID (VSPID). Aims: The aim of this study was to evaluate the effects of CFP+ on the …

2022-06-01AlgemeenArtikel

Development of a Dutch Training/Education Program for a Healthy Lifestyle of People With Intellectual Disability

Overwijk, Annelies (Healthy Ageing, Allied Health Care And Nursing); Hilgenkamp, Thessa I.M.; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); van der Putten, A. A. J.; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

Individuals with intellectual disability (ID) need support from direct support professionals (DSPs) to engage in a healthy lifestyle. However, literature shows DSPs feel insufficiently equipped to support a healthy lifestyle. Therefore, the aim of this study is to develop a theory-based program for DSPs …

2022-04-01AlgemeenArtikel

“Continuously struggling for balance”:

L. (Liesbeth) Geuze (Docent); Sam J.C. Schrevel (Docent)

Background: Parents of children with profound intellectual and multiple disabilities (PIMD) have extensive care duties. This study describes the phenomenon “parenting a child with PIMD.” Method: We conducted in-depth interviews with 25 Dutch parents. A reflective lifeworld research. Findings: The …

2022Gezondheid; …Artikel

Implementation of a program to support direct support professionals to promote a healthy lifestyle for people with moderate to profound intellectual disabilities

Overwijk, Annelies (Healthy Ageing, Allied Health Care And Nursing); Hilgenkamp, Thessa I.M.; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Krijnen, Wim (Statistical Techniques For Applied Research); Vlot-van Anrooij, D.E.K.; van der Putten, A. A. J.; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

Background: There is a lack of theory-based interventions for direct support professionals (DSPs) to support a healthy lifestyle for people with moderate to profound intellectual disabilities (ID) despite their major role in this. This study aims to evaluate the preparation, implementation, and preliminary …

2022AlgemeenArtikel

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