Objective To obtain insights into parents' information needs during the first year at home with their very preterm (VP) born infant. Methods We conducted semi-structured interviews with parents of VP infants participating in a post-discharge responsive parenting intervention (TOP program). Online interviews …

Er is een gebrek aan kennis over gezinnen die adolescenten opvoeden met ernstig verstandelijke en meervoudige beperkingen (PIMD) tijdens de overgang naar volwassenheid. Deze studie onderzoekt de ervaringen en ondersteuningsbehoeften van deze gezinnen tijdens deze transitie. Er werd gebruik gemaakt van …

If parents perceive the neighborhood as child friendly, they will allow their children more independent travel and play. Parental perception of child friendliness is therefore an important prerequisite for designing neighborhoods that promote children's health and wellbeing. However, there is currently …

Personen met ernstige verstandelijke en meervoudige beperkingen (PIMD) hebben veel ondersteuningsbehoeften, die door hun familie moeten worden ingevuld. Door veerkrachtig te zijn, kunnen gezinnen zich positief aanpassen aan deze uitdaging en een positieve FQOL behouden. Daarom wilden we begrijpen hoe …

Background: It is thought that physical health conditions start at a young age in people with profound intellectual and multiple disabilities (PIMD). Knowledge regarding the prevalence, associations and development of these physical health conditions could be used for purposes of prevention as well as …

Purpose Sexuality and relationships education (SRE) often do not accommodate the needs of vulnerable young people in child and youth social care, (school) social work, and residential or foster care, leaving professionals in these fields a vital role in delivering SRE to these young people. This scoping …

Several interventions have been developed to support families living with parental mental illness (PMI). Recent evidence suggests that programmes with whole-family components may have greater positive effects for families, thereby also reducing costs to health and social care systems. This review aimed …

Background: Collaboration between therapists and parents of children with developmental disabilities is a key element of family-centred care. In practice, collaboration appears to be challenging for both parents and therapists. This systematic review aims to make explicit how therapists can optimise …

Background: Collaborative practice between therapists and parents is a key element of family-centred care and is essential if we want to address family priorities and needs in interventions. However, collaborative practice is challenging for speech and language therapists (SLTs) and parents. To facilitate …

Objective: The majority of parents with a disabled child experience chronic sorrow, characterized by recurrent feelings of grief and loss related to their child’s disability. There is a significant lack of research on parents’ lived experiences of chronic sorrow, which limits our ability to understand …