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Evaluation of Allied Healthcare in Patients Recovering from Covid-19: Study Protocol and Baseline Data of a National Prospective Cohort Study.

Sonja van Oers; R.A. de Bie; K. Verburg; C. Agasi-Idenburg; E.H.C. Cup; C. Dekker; J.M. van Dongen; E. Geleijn; M.H.G. Gerards; M. Graff; R. Van Heerde; H. Kalf; M. Kammerer; A. De Kruif; H.M. Kruizenga; M van der Leeden; T.A.F. Lenssen; W.M. Meijer; R. Ostelo; A. Ronteltap; M. Van der Schaaf; Marian de van der Schueren; A.I. Slotegraaf; C. Veenhof; T.J. Hoogeboom; P. Van der Wees

OBJECTIVE: To report the study protocol and baseline characteristics of a prospective cohort study to evaluate longitudinal recovery trajectories of patients recovering from COVID-19 who have visited a primary care allied health professional. DESIGN: Prospective cohort study with a mixed-methods approach. …

2022AlgemeenArtikel

Experiences of patients with facioscapulohumeral dystrophy with facial weakness: a qualitative study

S Sezer; E.H.C. Cup; LM Roets-Merken; A Lanser; I Siemann; JG Weikamp; K Mul; BG van Engelen; Ton Satink; NC Voermans

Purpose This study focuses on the functional and psychosocial consequences of facial weakness of patients with facioscapulohumeral muscular dystrophy (FSHD) and how they manage their daily lives. Materials and methods We conducted a qualitative study. Sixteen FSHD patients with varying degrees of facial …

2021AlgemeenArtikel

Mixed methods evaluation of a self-management group programme for patients with neuromuscular disease and chronic fatigue

Y Veenhuizen; Ton Satink; Maud Graff; A.C.H. Geurts; JT Groothuis; B.G.M. van Engelen; Ria Nijhuis-van der Sanden; E.H.C. Cup

Objective To obtain insight into experiences of patients with a neuromuscular disease and chronic fatigue and their healthcare professionals regarding content and delivery of a multidisciplinary outpatient self-management group programme to improve social participation. This will inform future implementation. …

2021AlgemeenArtikel

NON-PHARMACOLOGICAL CARE IN SYSTEMIC SCLEROSIS: OPENING THE BLACK BOX

Juliane Stöcker; E.H.C. Cup; M Vonk; F van den Hoogen; Ria Nijhuis-van der Sanden; Bart Staal; C. van den Ende

2018AlgemeenArtikel

What moves the rheumatologist? Unravelling decision making in the referral of systemic sclerosis patients to health professionals: a qualitative study

Juliane Stöcker; E.H.C. Cup; M.C. Vonk; F.H.C. van den Hoogen; Ria Nijhuis-van der Sanden; Bart Staal; C.H.M. Ende