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Worries and needs of adults and parents of adults with neurofibromatosis type 1

A.B. Rietman (Onderzoeker); H. van Helden (Onderzoeker); P.H. Both (Onderzoeker); W. Taal (Onderzoeker); J.S. Legerstee (Onderzoeker); A.L. van Staa (Lector); H.A. Moll (Onderzoeker); R. Oostenbrink (Onderzoeker); A.M. van Eeghen (Onderzoeker)

Neurofibromatosis type 1 (NF1) is a neurocutaneous disorder associated with lifelong tumor growth propensity and neurocognitive impairments. Although follow‐up of adults with NF1 often focuses on tumor growth, follow‐up of cognitive or social problems and other NF1‐related comorbidity is often not a …

2018-04-21GezondheidArtikel

Reduced quality of life and persistent complaints in treated hypothyroid patients

Ellen Molewijk (Onderzoeker); M Martens (Onderzoeker); Eric Fliers (Onderzoeker); Koen Dreijerink (Onderzoeker); Ad van Dooren (Lector); Rob Heerdink (Onderzoeker)

Background: Hypothyroidism is a common endocrine disorder and the standard treatment is replacement therapy with levothyroxine (LT4). Although many hypothyroid patients improve upon treatment with LT4, a proportion seems to experience residual hypothyroid complaints despite treatment, even when plasma …

2018GezondheidConferentiebijdrage

Long-term deterioration of perceived health and functioning in adults with cerebral palsy

J.L. Benner; S.R. Hilberink; T. Veenis; H.J. Stam; W.M.A. van der Slot; M.E. Roebroeck

Objective To describe longitudinal change in perceived health, presence of health issues, and functional level in adults with cerebral palsy (CP). Design Prospective cohort study. Setting Participants' daily environment. Participants Adults (N=49) with CP (age range, 35–45y; 27 [55%] men; 36 [75%] …

2017-04-18GezondheidArtikel

Validity of the modified Berg Balance Scale in adults with intellectual and visual disabilities

Dijkhuizen, Annemarie; Krijnen, Wim P (Statistical Techniques For Applied Research); van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

Background A modified version of the Berg Balance Scale (mBBS) was developed for individuals with intellectual and visual disabilities (IVD). However, the concurrent and predictive validity has not yet been determined. Aim The purpose of the current study was to evaluate the concurrent and predictive …

2017-03-01AlgemeenArtikel

Effectiveness of sensor monitoring in an occupational therapy rehabilitation program for older individuals after hip fracture, the SO-HIP trial

Pol, Margriet C.; ter Riet, Gerben; van Hartingsveldt, Margo; Kröse, Ben; de Rooij, Sophia E.; Buurman, Bianca M.

BACKGROUND: The performance of activities of daily living (ADL) at home is important for the recovery of older individuals after hip fracture. However, 20-90% of these individuals lose ADL function and never fully recover. It is currently unknown to what extent occupational therapy (OT) with coaching …

2017-01-03AlgemeenArtikel

Personal meaning in relation to daily functioning of a patient in physical therapy practice: narratives of a patient, a family member, and physical therapist

Ellen Oosting (Onderzoeker); Jaap Dronkers (Lid Lectoraat); Thomas J. Hoogeboom (Onderzoeker); Nico L.U. van Meeteren (Onderzoeker); Willem Marie Speelman

Purpose: To get insight into personal meaning of a person involved in a physical therapy intervention. Methods: Mrs. A, a 76-year-old woman is referred to a physical therapist (PT) for assessment of functioning and training before total hip arthroplasty (THA). The patient, her daughter, and PT were …

2017GezondheidArtikel

Patient Characteristics Associated With a Successful Response to Nurse-Led Care Programs Targeting the Oldest-Old

Nienke Bleijenberg (Lid Lectoraat); Lorenz Imhof; Romy Mahrer-Imhof; Margaret Wallhagen; Niek de Wit; Marieke Schuurmans (Lector)

Background: To improve the effectiveness of community-based care programs, especially those targeting the oldest-old population (80+), data are needed that elucidate those factors associated with a successful response to the intervention. Two comparable nurse-led care programs have been evaluated …

2017GezondheidArtikel

Evaluating the outcome of an individual functional therapy program focused on children with cerebral palsy and cerebral visual impairment:

Salavati, Masoud; Rameckers, E.A.A.; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); Krijnen, Wim (Statistical Techniques For Applied Research); van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Steenbergen, B.

Background: To date, there is no evidence-based functional therapy programme available for children with both cerebral palsy (CP) and cerebral visual impairment (CVI). This study evaluates an individually targeted functional therapy programme adapted for these children experiencing difficulties with …

2017AlgemeenArtikel

Exploring the efficiency of the Tilburg Frailty Indicator

Robbert Gobbens (Lector); J.M.G.A. Schols; Marcel van Assen

Abstract: Due to rapidly aging human populations, frailty has become an essential concept, as it identifies older people who have higher risk of adverse outcomes, such as disability, institutionalization, lower quality of life, and premature death. The Tilburg Frailty Indicator (TFI) is a user-friendly …

2017GezondheidRecensie

Description of movement quality in patients with low back pain: A qualitative study as a first step to a practical definition

van Dijk, Margriet J. H.; Smorenburg, Nienke T. A.; Visser, Bart (Lectoraat Oefentherapie); Nijhuis-van der Sanden, Maria W. G.; Heerkens, Yvonne F.

PURPOSE: As a first step to formulate a practical definition for movement quality (MQ), this study aims to explore how Dutch allied health care professionals (AHCPs) describe MQ of daily life activities in patients with low back pain (LBP). METHODS: In this qualitative cross-sectional digital survey …

2017AlgemeenArtikel

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