Objective Major issues in children with Marfan syndrome (MFS) are pain, fatigue and joint hypermobility which might influence functional ability. We recently studied these aspects in children with Ehlers-Danlos syndrome hypermobility type (EDS-HT) and hypermobility spectrum disorders (HSD). What can …

Background: Previous studies found that 40-60% of the sarcoidosis patients suffer from small fiber neuropathy (SFN), substantially affecting quality of life. SFN is difficult to diagnose, as a gold standard is still lacking. The need for an easily administered screening instrument to identify sarcoidosis-associated …

Previous research has concluded that currently humanitarian organisations are not communicating their knowledge effectively to communities and they have a lack of insight in existing knowledge exchange strategies to improve the adaptation of knowledge in communities. The purpose of this study was …

The increase of people living with chronic conditions has compelled society to develop and implement strategies that promote collaboration between patients and healthcare professionals, and which provide the patients with an active role in their care. In order to accomplish this, the World Health Organization, …

Bynder is a Software as a Service company that develops and provides a Digital Asset Management tool. It was founded in 2012 in Amsterdam and it currently consists of 275 employees in offices in Boston, Amsterdam, Rotterdam, London, Barcelona, and Dubai. The business participates in several events from …

Even though meaning making is an important component of the mental health recovery programme, it turns out to be an underscored dimension in mental health care. This qualitative mixed method research was focused on meaning making in an art studio for psychologically vurnerable people. The main goal of …

Background Routine outpatient care of patients with coronary artery disease (CAD) lacks a simple measure of physical fitness and risk of mortality. Heart rate recovery (HRR) is noninvasive and easily obtainable in outpatient settings. Prior studies have suggested that delayed postexercise HRR in the …

Objective Depressive and anxiety symptoms are associated with Ischemic Heart Disease (IHD). Exercise interventions might improve both depressive and anxiety symptoms, but an overview of the evidence is lacking. Therefore, we systematically reviewed the existing literature on the effectiveness of exercise …

Doelstelling: Uit recent onderzoek blijkt dat dichoptische training de visus kan verbeteren bij jong volwassenen met anisometropie en/of strabismus amblyopie. Het is nog onbekend hoeveel trainingsuren nodig zijn om een bepaalde visusstijging te bereiken. In dit literatuuronderzoek wordt gekeken naar …

Overweight and obesity are common in patients with facioscapulohumeral dystrophy (FSHD) and myotonic dystrophy type 1 (DM1). Lifestyle change is often challenging for patients with neuromuscular diseases, especially to increase physical activity. When lifestyle changes have not been effective, bariatric …