Background:  end-of-life care is not always in line with end-of-life preferences, so patients do not always die at their preferred place of death (PPD). This study aims to identify factors associated with patients' PPD and changes in PPD.  Methods:  we prospectively collected data on PPD at four time …

In de palliatieve levensfase komen angst en spanningsklachten vaak voor. Angst kan de kwaliteit van leven beïnvloeden. Er is weinig bekend over fysiotherapie in de palliatieve levensfase. Het is onduidelijk welke fysiotherapeutische interventies effectief zijn bij patiënten met angst en spanningsklachten. …

It is unclear to what extent patients with pancreatic cancer have cachexia and had a dietetic consult for nutritional support. The aim was to assess the prevalence of cachexia, dietitian consultation, and overall survival in these patients. This prospective multicenter cohort study included patients …

Background: Cachexia is common in patients with esophagogastric cancer and is associated with increased mortality. Nutritional screening and dietetic interventions can be helpful in preventing evolvement of cachexia. Our aim was to study the real-world prevalence and prognostic value of pretreatment …

Gepubliceerd in Medical Teacher, 17-10-2020, Taylor & Francis Online https://www.tandfonline.com/toc/imte20/current?gclid=EAIaIQobChMI4bTGiZrs7wIVSBV7Ch3GzAAbEAAYASAAEgKAMfD_BwE CC-BY-NC-ND With an increasingly ageing population there will be a rising demand for palliative care, including from older …

Shared decision-making (SDM) is theprocess in which healthcare professionals and patients jointly discuss and decide which care and treatment policy is to be followed. The importance of SDM is increasingly being recognised across health settings, including palliative care. Little is known about SDM with …

Dit artikel is eerder gepubliccerd in het Nederlands Vlaams Tijdschrift voor Palliatieve Zorg, 2020-16 https://nvtpz.org/  Samenvatting (Nederlands) Het kwaliteitskader Palliatieve zorg beschrijft als standaard: Proactieve zorgplanning wordt tijdig en op passende wijze aan de orde gesteld, bij voorkeur …

Background: Palliative needs in older patients are often not timely identified. The Surprise Question (SQ) ‘would I be surprised if this patient died in the next year?’ is a well-researched tool that could aid in this effort. Most studies thus far involved physicians or specialist nurses, however the …

Background: Infantile hereditary proximal spinal muscular atrophy (SMA) type 1 is characterized by onset in the first 6 months of life and severe and progressive muscle weakness. Dysphagia is a common complication but has not been studied in detail. Objective: To study feeding and swallowing problems …