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Somatic symptoms, pain, catastrophizing and the association with disability among children with heritable connective tissue disorders

de Koning, Lisanne E. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Warnink-Kavelaars, Jessica; van Rossum, Marion A.; Bosman, Diederik; Menke, Leonie A.; Malfait, Fransiska; de Boer, Rosa; Oosterlaan, Jaap; Engelbert, Raoul H.H. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies

The aim of the present study was to investigate the nature and prevalence of nonspecific somatic symptoms, pain and catastrophizing in children with Heritable Connective Tissue Disorders (HCTD), and to determine their association with disability. This observational, multicenter study included 127 children, …

2023-07AlgemeenArtikel

An exploratory study of clinical characteristics and gait features of adolescents with hypermobility disorders

de Koning, Lisanne E. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Scheper, Mark C.; Ploeger, Hilde E.; Warnink-Kavelaars, Jessica; Oosterlaan, Jaap; Bus, Sicco A.; Engelbert, Raoul H.H. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten)

Background In adolescents with non-pathological and pathological joint hypermobility, gait deviations have been associated with pain and fatigue. It remains unclear what distinguishes the non-pathological form of joint hypermobility (JH) from pathological forms (i.e. hypermobile Ehlers-Danlos syndrome …

2023-02AlgemeenArtikel

Physical activity and physical fitness in children with heritable connective tissue disorders

de Koning, Lisanne (Centre Of Expertise Urban Vitality); Warnink-Kavelaars, Jessica; van Rossum, Marion; Limmen, Selina; Van der Looven, Ruth; Muiño-Mosquera, Laura; van der Hulst, Annelies; Oosterlaan, Jaap; Rombaut, Lies; Engelbert, Raoul (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten)

Objectives: Health problems in patients with heritable connective tissue disorders (HCTD) are diverse and complex and might lead to lower physical activity (PA) and physical fitness (PF). This study aimed to investigate the PA and PF of children with heritable connective tissue disorders (HCTD). Methods: …

2023AlgemeenArtikel

Heritable connective tissue disorders in childhood: Decreased health-related quality of life and mental health

Warnink-Kavelaars, Jessica; de Koning, Lisanne E. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies; Menke, Leonie A.; Alsem, Mattijs W.; van Oers, Hedy A.; Buizer, Annemieke I.; Engelbert, Raoul H. H. (Centre Of Expertise Urban Vitality); Oosterlaan, Jaap

The psychosocial consequences of growing up with Heritable Connective Tissue Disorders (HCTD) are largely unknown. We aimed to assess Health-Related Quality of Life (HRQoL) and mental health of children and adolescents with HCTD. This observational multicenter study included 126 children, aged 4–18 years, …

2022-07AlgemeenArtikel

A Causal Loop Diagram of factors that influence motor skills in school-aged children

Pepping, Rian; Janssen, Mirka (Lectoraat Bewegen In En Om School); Streppel, Martinet (Lectoraat Voeding En Beweging); Fukkink, Ruben (Kenniscentrum Onderwijs En Opvoeding); Engelbert, Raoul (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); van Hartingsveldt, Margo (Lectoraat Ergotherapie - Participatie En Omgeving); Busch, Vincent; Stallen, Mirre (Lectoraat Armoede Interventies); Oosterlaan, Jaap

2022AlgemeenConferentiebijdrage

Physical Functioning After Admission to the PICU: A Scoping Review

Bossen, Daniël (Centre Of Expertise Urban Vitality); de Boer, Rosa M.; Knoester, Hendrika; Maaskant, Jolanda M.; van der Schaaf, Marike (Faculteit Gezondheid); Alsem, Mattijs W.; Gemke, Reinoud J. B. J.; van Woensel, Job B. M.; Oosterlaan, Jaap; Engelbert, Raoul H. H. (Centre Of Expertise Urban Vitality)

Objectives: To conduct a scoping review to 1) describe findings and determinants of physical functioning in children during and/or after PICU stay, 2) identify which domains of physical functioning are measured, 3) and synthesize the clinical and research knowledge gaps. Data Sources: A systematic search …

2021-06AlgemeenAndersoortig materiaal

Heritable connective tissue disorders in childhood

Warnink-Kavelaars, Jessica; de Koning, Lisanne E (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies; Alsem, Mattijs W; Menke, Leonie A; Oosterlaan, Jaap; Buizer, Annemieke I; Engelbert, Raoul H H (Centre Of Expertise Urban Vitality); On Behalf Of The Pediatric Heritable Connective Tissue Disorders Study Group

Heritable Connective Tissue Disorders (HCTD) show an overlap in the physical features that can evolve in childhood. It is unclear to what extent children with HCTD experience burden of disease. This study aims to quantify fatigue, pain, disability and general health with standardized validated questionnaires. …

2021-05-28AlgemeenArtikel

Physical functioning in pediatric intensive care survivors and its associated determinants: A scoping review protocol

de Boer, RM; Bossen, D (Lectoraat Oefentherapie); Maaskant, JM; van der Schaaf, M; Alsem, MW; Knoester, H; Gemke, RJBJ; van Woensel, JBM; Oosterlaan, J; Engelbert, RHH; de Boer, Rosa Maria; Bossen, Daniël (Lectoraat Oefentherapie)

Objective: The objective of this scoping review is threefold: (1) to describe outcomes of and determinants for physical functioning in pediatric intensive care unit (PICU) survivors evaluated during and/or after their PICU stay, (2) to provide an overview how physical functioning and its associated determinants …

2019-11-19AlgemeenAndersoortig materiaal

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