Background: Marfan syndrome (MFS) is a heritable connective tissue disease caused by a defect in FBN1. The diagnosis is based on the revised Ghent criteria. The main features involve the cardiovascular, musculoskeletal, ophthalmic, pulmonary systems and facial features. Although the clinical manifestations …

This study describes nurses’ perspectives about their experience of being involved in a 6-day educational intervention which focused on the development of competency in family nursing practice with a particular emphasis on family nursing conversations. The foundational knowledge of the educational intervention …

The influence of a person’s environment and its modifying potential on participation is well recognized for most childhood disabilities, but scarcely studied for adolescents with autism spectrum disorder (ASD). A scoping review was conducted, the aim of which was to map the existing literature about …

This book focuses on the key issues that affect military families when soldiers are deployed overseas, focusing on the support given to military personnel and families before, during, and after missions

Deployments, such as the ones to Uruzgan, do not end when service members return home. For an extensive period of time, they have performed their jobs in a hazardous environment, with ambushes and violent attacks and the risk of being wounded or even killed. They may also have witnessed violation of …

Roma are a transnational nomadic population. For centuries, they have traveled around the world due to persecutions or in search of economic prosperity. Roma are a heterogeneous minority. They are not one group. There are many different groups of Roma. Nowadays, an estimated 12 million Roma live in Europe …

In this study the question is raised how family support should be organized so that it is as efficient and effective as can be. Exchange theory can provide an answer to this question while taking into account that the needs of individuals will differ. In the study that is presented here, generalized …