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Pain in adults with cerebral palsy: a systematic review and meta-analysis of individual participant data

W.M.A. van der Slot; J.L. Benner; L. Brunton; J.M. Engel; P. Gallien; S.R. Hilberink; G. Mànum; P. Morgan; A. Opheim; I. Riquelme; E. Rodby-Bousquet; T. Tarsuslu Simsek; D.E. Thorpe; R.J.G. van den Berg-Emons; L.K. Vogtle; G. Papageorgiou; M.E. Roebroeck

Background There is little focus on adults with cerebral palsy (CP) in research and health care and insufficient knowledge on how to identify and manage pain in this population. Objectives This systematic review and meta-analysis aimed to determine whether pain prevalence in adults with CP is high …

2020-02-13GezondheidArtikel

Autonomy in participation in cerebral palsy from childhood to adulthood

A.K. Schmidt; M. van Gorp; L. van Wely; M. Ketelaar; S.R. Hilberink; M.E. Roebroeck

AIM To determine the long-term development of autonomy in participation of individuals with cerebral palsy (CP) without intellectual disability. METHOD Individuals with CP (n=189, 117 males, 72 females; mean age [SD] 21y 11mo [4y 11mo], range 12–34y); were assessed cross-sectionally (46%) or up to four …

2019-10-02GezondheidArtikel

Progressive resistance training for persons with intellectual disabilities and visual impairment

Dijkhuizen, Annemarie; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); Hermans, Seph; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Krijnen, Wim (Statistical Techniques For Applied Research)

Background: Knowledge concerning the feasibility and effects of progressive resistance training (PRT) for persons with intellectual disabilities and visual impairment who are categorized in Gross Motor Function Classification System (GMFCS) Level 1 is limited. The aim of our study was to evaluate feasibility …

2019-09-01AlgemeenArtikel

Het meten van de quadricepskracht bij mensen met een visuele, verstandelijk en motorische beperking

Manon ten Berge (Student); Annemarie Dijkhuizen (Begeleider)

Inleiding: Mensen met een visuele, verstandelijke en motorische beperking zijn minder fysiek actief en fit. De spierkracht van de onderste extremiteiten is van belang voor het uitvoeren van dagelijkse activiteiten als opstaan, traplopen en wandelen. Voor mensen met een visuele, verstandelijke en motorische …

2019GezondheidBachelor

Course of employment in adults with cerebral palsy over a 14‐year period

J.L. Benner; S.R. Hilberink; T. Veenis; W.M.A. van der Slot; M.E. Roebroeck

Aim To explore the course of employment in adults with cerebral palsy (CP) over 14 years, and to identify subgroups at risk for unemployment. Method Sixty‐five adults with CP (33 males, 32 females; baseline age 25y 8mo, standard deviation [SD] 3y 2mo; intellectual impairment 25%; bilateral CP 65%) participated …

2017-03-17GezondheidArtikel

Development and face validity of a cerebral visual impairment motor questionnaire for children with cerebral palsy

Salavati, Masoud; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); Rameckers, E.A.A.; van der Steen, J; Krijnen, W.P. (Statistical Techniques For Applied Research); van der Schans, C.P. (Healthy Ageing, Allied Health Care And Nursing); Steenbergen, B.

AIM: The objectives of this study were (i) to develop two cerebral visual impairment motor questionnaires (CVI-MQ's) for children with cerebral palsy (CP): one for children with Gross Motor Function Classification System (GMFCS) levels I, II and III and one for children with GMFCS levels IV and V; (ii) …

2017-01AlgemeenArtikel

Gross motor function in children with spastic cerebral palsy and cerebral visual impairment

Salavati, M; Rameckers, E A A; Waninge, A (Participation And Health Of Persons With Intellectual And Visual Disabilities); Krijnen, Wim (Statistical Techniques For Applied Research); Steenbergen, B.; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing)

PURPOSE: To investigate whether the adapted version of the Gross Motor Function Measure-88 (GMFM-88) for children with Cerebral Palsy (CP) and Cerebral Visual Impairment (CVI) results in higher scores. This is most likely to be a reflection of their gross motor function, however it may be the result …

2017-01AlgemeenArtikel

Evaluating the outcome of an individual functional therapy program focused on children with cerebral palsy and cerebral visual impairment:

Salavati, Masoud; Rameckers, E.A.A.; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); Krijnen, Wim (Statistical Techniques For Applied Research); van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Steenbergen, B.

Background: To date, there is no evidence-based functional therapy programme available for children with both cerebral palsy (CP) and cerebral visual impairment (CVI). This study evaluates an individually targeted functional therapy programme adapted for these children experiencing difficulties with …

2017AlgemeenArtikel

Reliability of the modified Gross Motor Function Measure-88 (GMFM-88) for children with both Spastic Cerebral Palsy and Cerebral Visual Impairment

Salavati, Masoud; Krijnen, Wim (Statistical Techniques For Applied Research); Rameckers, E.A.A.; Looijestijn, P.L.; Maathuis, C.G.; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Steenbergen, B.

PURPOSE: The aims of this study were to adapt the Gross Motor Function Measure-88 (GMFM-88) for children with Cerebral Palsy (CP) and Cerebral Visual Impairment (CVI) and to determine the test-retest and interobserver reliability of the adapted version. METHOD: Sixteen paediatric physical therapists …

2015-07-25AlgemeenArtikel

Gross motor function, functional skills and caregiver assistance in children with spastic cerebral palsy (CP) with and without cerebral visual impairment (CVI)

Salavati, Masoud; Rameckers, E.A.A.; Steenbergen, B.; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing)

Abstract Aim: To determine whether the level of gross motor function and functional skills in children with cerebral palsy (CP) and cerebral visual impairment (CVI) as well as caregiver assistance are lower in comparison with the corresponding group of children experiencing CP without CVI. Method: Data …

2014-04-24AlgemeenArtikel

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