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studiedag EDOMAH

Marjolein Thijssen

2022AlgemeenAndersoortig materiaal

A Blended Electronic Illness Management and Recovery Program for People With Severe Mental Illness: Qualitative Process Evaluation Alongside a Randomized Controlled Trial

T.A.A. Beentjes; Betsie van Gaal; H. Vermeulen; Ria Nijhuis-van der Sanden; Puck Goossens

2021AlgemeenArtikel

Identifying the minimal important difference in patient-reported outcome measures in the field of people with severe mental illness: a pre-post-analysis of the Illness Management and Recovery Programme

T.A.A. Beentjes; S. Teerenstra; H. Vermeulen; Puck Goossens; Ria Nijhuis-van der Sanden; Betsie van Gaal

Purpose Complementary interventions for persons with severe mental illness (SMI) focus on both personal recovery and illness self-management. This paper aimed to identify the patient-reported outcome measures (PROMs) associated with the most relevant and meaningful change in persons with SMI who attended …

2021AlgemeenArtikel

Multifaceted interventions are required to improve physical activity behaviour in hospital care: a meta-ethnographic synthesis of qualitative research

N. Koenders; L Marcellis; Ria Nijhuis-van der Sanden; Ton Satink; Th. Hoogeboom

Question: What are the views of patients, close relatives and healthcare professionals on physical activity behaviour in hospital care? Methods: A meta-ethnographic synthesis of qualitative studies was conducted with a lines-of-argument analysis. The methodological quality of included studies was evaluated …

2021AlgemeenArtikel

Experiences of patients with facioscapulohumeral dystrophy with facial weakness: a qualitative study

S Sezer; E.H.C. Cup; LM Roets-Merken; A Lanser; I Siemann; JG Weikamp; K Mul; BG van Engelen; Ton Satink; NC Voermans

Purpose This study focuses on the functional and psychosocial consequences of facial weakness of patients with facioscapulohumeral muscular dystrophy (FSHD) and how they manage their daily lives. Materials and methods We conducted a qualitative study. Sixteen FSHD patients with varying degrees of facial …

2021AlgemeenArtikel

How chronic pain changes a person's life story in relation to participation in occupational roles: A narrative exploration

P Strub; Ton Satink; BE Gantschnig

Background Chronic pain (CP) affects a large part of the population worldwide, decreasing physical and mental health and causing a shift in occupational roles. This has created a need for a better understanding to address this problem. Objectives To explore possible changes in occupational roles and …

2021AlgemeenArtikel

Setting meaningful goals in rehabilitation: a practical tool

J Dekker; V. de Groot; A.M. ter Steeg; J. Vloothuis; J. Holla; E. Collette; Ton Satink; L. Post; S. Doodeman; E. Littooij

2021AlgemeenArtikel

Mixed methods evaluation of a self-management group programme for patients with neuromuscular disease and chronic fatigue

Y Veenhuizen; Ton Satink; Maud Graff; A.C.H. Geurts; JT Groothuis; B.G.M. van Engelen; Ria Nijhuis-van der Sanden; E.H.C. Cup

Objective To obtain insight into experiences of patients with a neuromuscular disease and chronic fatigue and their healthcare professionals regarding content and delivery of a multidisciplinary outpatient self-management group programme to improve social participation. This will inform future implementation. …

2021AlgemeenArtikel

Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

Hans Kerstens; B.J.H. van Lith; M.J. Nijkrake; Bert de Swart; LAC van den Bemd; RJEM Smeets; F Klemens; BPC van de Warrenburg; P.J. van der Wees; A.C.H. Geurts

Background We aimed to identify healthcare needs, expectations, utilization, and the experienced treatment effects in a population of Dutch patients with hereditary spastic paraplegia (HSP). Methods We distributed an online questionnaire among 194 adult persons with HSP in the Netherlands, of which 166 …

2021AlgemeenArtikel

Enabling visibility of the clinician-scientists' knowledge broker role: a participatory design research in the Dutch nursing-home sector

Margot Barry; Wietske Kuijer; A. Persoon; Loek Nieuwenhuis; N. Scherpbier

Background A group of clinician-scientists and managers working within a Dutch academic network, experienced difficulties in clearly defining the knowledge broker role of the clinician-scientists. They found no role clarity in literature, nor did they find tools or methods suitable for clinician-scientists. …

2021AlgemeenArtikel

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