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Negotiating role management through everyday activities: narratives in action of two stroke survivors and their spouses

Negotiating role management through everyday activities: narratives in action of two stroke survivors and their spouses

Samenvatting

Purpose: To manage social roles is a challenging part of self-management post-stroke. This study explored how stroke survivors act as role managers with their spouses in the context of everyday activities. Method: Two stroke survivors with a first time stroke living at home with a spouse were included. Data were generated through participant observations at their own environment at 3, 6, 9, 15 and 21 months post-discharge. The narrative analysis focused on the actions of participants. Results: Daily activities can be understood as an arena where role management and a meaningful live is negotiated and co-constructed with others. Everyday activities gave stroke survivors and their spouses insight into stroke survivors' capacities in daily situations. This was sometimes empowering, and other times conflicting when a spouse had negative perceptions of the abilities of the stroke survivors. Conclusion: The findings add to the current understanding of self-management and role management with regard to how these are situated in everyday activities. Daily activities can help both spouses to reflect and understand about self-management, role management and comanagement in daily life. Moreover, observing stroke survivors in everyday situations provides professionals with concrete pictures of stroke survivors' performance and self-management in interaction with their spouses.

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OrganisatieHAN University of Applied Sciences
AfdelingAcademie Paramedische Studies
Lectoraten
LectoraatNeurorevalidatie
Gepubliceerd inDisability and Rehabilitation Taylor & Francis, Vol. 38, Pagina's: 2354-2364
Jaar2016
TypeArtikel
DOI10.3109/09638288.2015.1129442
TaalOnbekend

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